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I’d be so incredibly dead if it wasn’t for modern medicine and a few physicians that seemed part magicians as well as excellent doctors. My gratitude is an understatement, to say the least! 

And yet, from the tenuousness of intermittent chronic health conditions to the fragility of human relationships, as I traverse through the narrowing of life, it all seems ever more fragile. Why? It is inevitable that a sense of security can evaporate in a heartbeat given a crisis. After a number of GI surgeries over the years, scarring has caught up with me, both the literal and metaphoric. 

While I don’t have any sort of actual timeline or expiration date (that I’m aware of at least) I may have used up all the good luck I’ve had to this point. For previous good luck (karma) I am grateful. And in a weird way, knowing there’s a more significant limit lets me see what time remains available can be viewed differently. What do I want to do with it? How do I want to live? Where? In what other circumstances? By what day-part-by-day part calculation? Perennial questions, all.

A Different Kind of Creature

Now I have always been the least conventional personality in my crowded family of origin. Having said that, I have also learned convention and stability don’t have to be dirty words either. When I was just five years old, we had a trapeze in our basement. I loved to swing and stand on it, pumping my little legs for momentum. I’d fantasize about being a famous trapeze artist in a circus with crowds of people cheering me on. It’s as if I’d never gotten completely acclimatized to being in a body. I envisioned myself flying through the air. Wasn’t I supposed to fly?

One such day I was doing this very act, with my mother in the basement loading the washing machine over in the corner. As (bad) luck would have it, I let go of my arms and promptly fell flat on my back with only the thinnest of raggedy rugs on the concrete for a cushion below. Splat!

The fall must have hit a nerve to my lungs because I couldn’t breathe, gasping for air was I! Thank God my mother was close by but as more (bad) luck would have it, she scooped me up and carried me upstairs. (This was before the days ordinary people would have been told not to move a person with certain kinds of falls.) Once there, she laid me flat on her bed. I think the bed was soft!

Perpetually Gasping

Next, she called my dad asking,  “what should I do, Nelson?” He must have told her to take me to the hospital, seven miles into town as we lived on an acreage. Again, she scoops me up, carries me to the car, my younger sister in our wake, and lays me out on the backseat, ultimately driving fast! (I’m still gasping for air, terrified and sobbing between breaths!) How we arrived unscathed is a wonder but once there, ER staff rushed me inside, X-rayed me only to discover I had five small vertebral fractures.

Ultimately, my treatment was to lay flat on my back, as still as possible, (basically rigid) in the bed, in a room with other patients, to let it heal. (They said it should be quick because I’m a child.) I had an excellent view of the ceiling but little else. I was able to see snatches of beds and people out of the corners of my eyes. For some reason, the Docs didn’t want to cast me. BUT, the threat was I had to lay perfectly still otherwise they would. I complied.

A Bit of History

This was my second significant patient do-what-the-doctors-say experience, having eye surgery at two and a half for a small growth pressing on my optic nerve a few years earlier. Bizarrely, I remember shards of the event, particularly being in the OR right before they put me out. I also remember waking up alone, screaming afterwards because I had both eyes covered in gauze, unable to see. I thought they had removed my eyes!! Terrifying for such a small child.

I had other health or moderate accidents along the childhood and young adulthood stages of my life—a few car accidents, illnesses, female issues, anorexia, travel dysentery, blah, blah, blah, recovering from all with minor or no lingering consequences to speak of. Remarkably, or maybe not, I also had years of health and vigor! Still, now that I’m at the narrowing of my life, with the body continuing to slowly break down, it’s impossible to not reflect on some of the incredible gifts though peppered with sorrows that dot my thinking at this time. 

History, Oh History

Unexpectedly, my earlier examples of relative endurance and toughness don’t compare to the “digging deep” throughout bowel resections to remove tumor growth, as well as several hernia repairs, that began in earnest several years ago. I guess you could say that ‘what came before’ prepared me for the now! It almost seems natural, a forgone conclusion, that I would survive it all since that’s my history. And while I had other health and accident issues, none of them compare to the GI surgeries in these more recent years. (And I’ll be honest, after one of them about three surgeries ago, I really wasn’t sure I’d make it!)

Yet, clearly I have made it this far. After eight surgical interventions beginning 20 years ago with a routine colonoscopy, I take it from my surgeon’s “you’re a survivor” comment, I may have surprised even him. And when I review my own history, it seems I can surprise myself. Years ago after a different but serious medical event, as I was recovering a doctor at the time asked me “what is your secret?” I was flummoxed, having no answer to tell him. I thought to myself, ‘I don’t know; aren’t I supposed to just keep going?’

The Slowness of a Sunset 

Clearly, my DNA, while an apparent curse in some respects, is also a blessing and is no small amount of salvation in others. And I have come to know that besides having some amazing doctors over the years, and an exceptional surgeon now, I do have a secret ingredient, I guess, a secret sauce, so to speak. For it has become inescapable to not see what an incredibly strong Will I’ve always had, propelling me forward. Plus, I can also endure discomfort and pain, remarkably well. After all, I’ve had practice! What’s more, I’m slightly fierce on occasion which, in combination, can add up to a lot of grit that is catalyzing.

And there you have it! A tidy little package of me: a bit of grit and a bit of swagger…and aren’t I supposed to just keep going anyway as my history and nature proscribe? Still, I suppose I can’t last forever, though I’m unable to really imagine no “me” at all not walking around the planet. So off I tromp, ever forward.

COMFORT

At two and a half, without completely understanding it, I was already heavily identified with the body. Of course I didn’t really know what that might mean. I, Rosalie, was a little person. There were other bodies in my family: my mother, my father, an older sister and a baby sister a bit younger.

I really only have two significant memories or memory shards below the age of five. One was of myself playing in a little sand pile outside our backyard, with toy cars and trucks on an imaginary town or ranch I created. I loved to invent the storyline of me driving around on roads in a truck. Oh, the freedom of it. I’m not even sure where I got the idea of a ranch, maybe from a little story book? or maybe having an imprint from going with mother past farms? Regardless of where it came from, it existed and for some inexplicable reason, it brought structure, organization and inventiveness to my world.

And the sun. I was always aware of light—bright, bold, effervescent light!

Why this memory sticks in my mind at all is mysterious, other than to say the ?????? also included a sense of something else that existed: nameless, peaceful, reassuring, warm. It was more reassuring and peaceful even than my mother although I had a strong impression she contained a solid measure of those qualities. 

But this is from the rearview mirror. Regardless, naming it at the time was not relevant. All I knew was that I felt the scene’s quiet power. It was carried by the sun’s light and heat, existing in the space both within my being and outside of it, separated only by a thin but potent membrane. I was aware of this otherness through not only light and sunshine but also nature, other physical elements of the world. 

Light seemed to be a primary delivery, however, communicating in a wordless language. And as much as I knew anything, it was my first crude memory of a sense of being cared for, by protection that was massive even beyond my mother but included her too. I’d be tempted to call it love with a capital L, maybe Divine, but I knew of no such construct then.

CONFUSION

The other significant memory occurred at around two and a half. I had a lump on the side of my right eye, near the temple. I think my mother had been fretting about it for quite some time. As it happens, she took me to an eye doctor and it was confirmed to be a cyst, a reasonably benign protrusion, harmless in and of itself. While I didn’t understand that at the time, I had a sense of no real danger. If anything, I had an awareness it was of more concern to my mother, which stands in stark contrast to her otherwise unflappable demeanor. 

I was told this particular cyst was problematic because of its location. Internally, it was pressing on my optic nerve and had the potential to compromise vision in that eye. Okay. But events overtook any crude understanding I had of the situation. One morning my mother led me by the hand, purposefully, walking across a large lobby. Bizarrely, I remember her walking quickly. This is bizarre in that it was out of character for my mother to do anything quickly. It simply was not her style—for walking, working, or anything else. Normally her gait was slow, methodical, determined, anything but quick. I’m assuming she had some sense of urgency about this little trip to the doctor’s office. This perception was new information for me.

The next part of the memory is hazy. I remember being in a little room, my mother speaking with the doctor, and him talking to her, then me. But I didn’t understand what either of them were telling me, not really. The best I can cobble together is of her saying I was to have a little procedure. She may have used the word procedure, surgery, etc. I cannot say. What I best remember was that I had to come back to have the cyst taken out.

IT’S NOT NICE TO TRAUMATIZE SMALL CHILDREN

Whether the procedure was the next day or a week later I do not know. Regardless, at some point I found myself again being led by the hand across a lobby and into a small room. Mother tried to explain that I had to stay overnight in the hospital, though I don’t really recall. What I do recall is a gauzy image of her trying to comfort me, that “everything will be fine” once the cyst was gone. She also swears she had explained more about what was to happen, that my eyes would be patched after the surgery but it would be temporary. Did I know what Temporary was?

All description about this cyst and the resultant eye surgery has likely been reinforced over the years while my mother was alive and throughout my childhood when I would bring it up. Even in my young adult years, I would question her about the event, all in an effort to understand why this was so upsetting to me even years later. 

The only reason I questioned her was because I had a lingering fright and even greater confusion as to the event’s meaning, along with the actual events themselves. Memory is a funny thing, the perception of a very small child in particular. It gets filtered through limited language and even less comprehension, as to its meaning. Perception by definition is distorted and memory further distorts what was initially perceived.

THE TURNING

There are two aspects, scenes really, mother could never explain, memories that she was not physically present for. After leaving me in the hands of a nurse the day of the procedure, the nurse put a little nightgown on me. Then she took me to a large room that was very, very cold. There was a lot of light in that room but I swear, even the light was cold. This was NOT like the light experienced in the sand pile. It was its opposite! The nurse helped me onto a very cold table while trying to explain what was to happen.

I recall a man—the doctor?—coming over to the table and saying a word or two. None of what he said do I recall. Rather, the scene is fixed like a cartoon character’s “wha-wha” description from Charles Schultz’s Snoopy before he leaves, goes over to the other side of the room to what I think must have been a sink. The nurse at my side whispers something to me and all goes black.

BLINDSIDED

The next thing I remember is waking up in a bed and screaming. Desperately. Both of my eyes were covered, thick patches obliterating sight, even light! I continued screaming even after a nurse came in and tried to shush me. I thought the doctor had removed my eyes! How would I navigate the world? I was terrified and would not be consoled. 

Evidently, the nurse tried to explain my eyes were there, they were just covered to protect them after the operation. Regardless, I had no faith in what she said because all I knew was that I could not see, believing instead there were no eyes to see from. Distorted as it may have been, my fast conclusion was to rely on myself and not anything she was telling me.

The hospital must have called my mother because I was told later that I kept screaming until she came, that no one else could calm me. How mother convinced me my eyes were still there I couldn’t tell you. I don’t remember her words but I do remember her energy. My mother was never a very affectionate woman but she was calm, reliable, steadfast, to be counted on. I knew that even then as sure as I knew there was a sun and a moon. But there was a change, palpable and real, in how I perceived her and more importantly, myself. A kind of doubt crept in. It was about the world and me in it. 

WHAT YOU THINK YOU SEE IS NOT WHAT’S THERE

At some point I go home. The patches have been removed. I can see again but there is a difference in what it is I think I see. While everything looks the same, my perception has changed, my understanding of what I can count on is off kilter. I am told I have to go back in a week or two to have stitches removed which seems like such a small thing at this point. 

I suppose one could draw all kinds of conclusions from this traumatic event for a very small child. Without entirely realizing it, however, perceptions occurred in my little brain as a consequence of all that had come before. The first was that my mother was cemented in my mind, and I suppose my heart, in her reliability, her constancy. After the surgery, however, the gravitational pull of her felt weakened and, in a turn, the gravity of her love and protection changed, modified somehow. My impression now included some inexplicable need to look to my small self for verification of the world and all things in it.

The second was that I firmly believed—without knowing I believed —the brightness of the sun had dimmed, was remote in a way that turned me into a separate “me” and less connected to that brightness as if I had been cast off from it. A sense of separateness and on my own had replaced the previous feeling of connectedness. No notion of a greater Other existed as comprehensively as the impression I previously held from the sand pile days, and of mother! It was a kind of grief I didn’t understand. Though not completely gone, it would be some years before I felt that powerful presence, and 50-plus years before I recontextualized my life.